About Us

Welcome! We are the McCaskill Family and we are so happy you are joining us in this journey. In July of 2020 we were blessed with our second child - a sweet baby boy named Clayton. After a complicated pregnancy, Clayton was admitted to the NICU where it was discovered he had feeding issues as well as some brain malformations (polymicrogyria, dysgenesis of the corpus callosum). He had a g-tube placed and we were sent home not knowing what the future would hold. We accepted our fears and concerns in becoming special needs parents and became advocates for our son. We spent our days traveling to and from the hospital for specialty appointments, communicating with case managers and community leaders, and ensuring we never missed a therapy session. Despite our efforts, our biggest fears came to reality as Clayton was further diagnosed with two genetic disorders, cerebral palsy, optic nerve hypoplasia, and pulmonary vein stenosis. He underwent two catheterization surgeries but his heart condition continued to return aggressively. Heartbroken, we made the decision to engage with palliative and hospice. Clayton succumbed to his conditions at one year, one day in age. He passed peacefully at home. 

To continue give meaning to our son's life, and to regain our sense of purpose we have chosen to live as if he were still here. That is, by helping families within our community get whatever is they need for their children to prosper. We hope that our efforts will empower special needs families and that there will never be a day where a parent has to fight for their child's medical necessities. We also believe that necessity is an understated word. Children also have a right to grow to their highest potential and engage in community activities- even if they need supplemental equipment to do so. We, like many parents of complex children, were given the dreadful task of obtaining a medicaid waiver. The whole process took seven months, and Clayton went without cranial remolding orthosis despite his need for it. We were beside ourselves knowing that children were going without the tools and supplies they needed and we saw a need for change. We hope to bridge the gap between what is deemed 'medically necessary' and what families truly need.